The Prague Post
October 7th, 2008
Endowment Fund     Business Listings ONLINE      Reservations      Classifieds    Subscriptions
Real Estate Prague Prague Rentals Prague Apartments Prague Art & Antiques


New plan targets care for disabled people

Patients will be given money to live outside of medical institutions

By Jana Donovan
For The Prague Post
January 3rd, 2007 issue

Martinka Ježková likes to read and walk around Prague Castle, which she can see from her room. The 36-year-old has spent most of her life in a home for the mentally disabled on Vlašská street, where her everyday life is filled with activities. She is happy where she is and would not like to live anywhere else.

But not everyone with disabilities — whether physical or mental — can say as much.

Indeed, care in the Czech Republic has long resembled scenes out of Miloš Forman's film One Flew Over The Cuckoo's Nest. Routinely institutionalized, sometimes unnecessarily, the disabled here often face inhumane treatment, such as having to stand in long lines for medicine or simply to shower.

Now, after a decade in the works, a new law expected to go into effect this month is set to change all that. Conceived to put a human face on disabled care, the law aims to help people live independent lives as normal members of society outside of institutions. It also aims to reduce the costs of keeping people in state facilities.

"The law fundamentally changes the approach," says Alexandr Fanta, the director of the Vlašská institution where Ježková lives.

Yet not everyone is happy with the law. Critics, including Fanta, welcome aspects of it but question others. They say the law appears designed for a reality that has already changed, as disabled care has actually undergone major adjustments in the past decade, even in the absence of new legislation. It has become more humane, with nonprofit groups filling in gaps in state care to provide key services.

Fanta agrees the old system needed changing. He and others say the disabled were long treated as immature, unable to make their own choices. "[Doctors] said, 'We have this solution for you and you have to take it the way it is,' " Fanta said.

And that led to a system of institutionalization. The Czech Republic has 1.7 beds for the physically or mentally disabled per 1,000 people — well above the 0.7 average found in most Western countries.

Complaints about law

Under the new law, a lot of those beds will be vacated. The state will give 2,000-11,000 Kč ($95-520) monthly handouts to disabled people, depending on their needs. With the money, patients will pay for healthcare services, such as a personal assistant for a few hours a day, directly from institutions, while they live on their own or with their families.

"We will be here to serve clients, and have to prepare services for them similarly as in a shop," says Fanta. "They will either buy it or not."

The problem, some say, is that the country still lacks caregivers to do those jobs. "The law has not been thought out properly," says Dana Černá, who is a wheelchair-user. "People will get money for assistants, but from practice we know there are few people to do such jobs. It is poorly paid."

But Marián Hošek, an official at the Labor and Social Affairs Ministry, says the ministry is set to provide the country's regions with 650 million Kč to hire more social workers to assist families caring for the disabled. Still, he admits the law needs to be fine-tuned.

Another major concern is the fate of nonprofit groups, which have come to play a key role in disabled care. Under the law, the regions will be charged with distributing state subsidies to nonprofits. But some groups fear regional officials will favor certain institutions, which would put some organizations and their patients at risk.

One such nonprofit is the Club of People in Wheelchairs. It provides 24-hour service for members, who simply press a button when in urgent need of help. But Chairwoman Alžběta Šafránková fears the law could hurt her club's members.

"We help around the clock, whenever our members need it," she says. "I can't imagine people having sole responsibility of organizing things for themselves."

Petr Hejl, head of the nonprofit Betlém in South Moravia, says the law should focus on improving the quality of life of disabled people. "There are many severely disabled people who will always need institutional care," he says. "What they need is a nice, loving environment."

Trusting families

Fanta believes the law suits those with physical disabilities. For the mentally disabled, things might get worse.

Take Ježková and the other 26 women who live at the Vlašská institution.

Ježková is lucky to have caring and loving parents, but some of her fellow residents come from a very different family background. Under the new law, the state funds will go to patients' custodians, who are usually family members.

"There is the risk some [families] will take the money and just sit the mentally disabled person in front of the television instead of working out a program for them," Fanta says.

Fanta says that, since the early 1990s, the situation for the mentally disabled has improved a lot. He says the key to that change has been making the person and his or her needs the center of attention.

Ježková, who will remain in the Vlašská home, lived through those changes. Having seen the old ways and the new, she is quite happy today.

"This is my place," she says, walking up the stairs to her attic bedroom.

Jana Donovan can be reached at news@praguepost.com


Other articles in News (3/01/2007):

Browse the Current Issue

If you enjoyed this article, why don't you subscribe to the print version!
We accept secure online transactions provided by PayPal and Moneybookers

Be the first to add a comment!


Full Name: *
City: *
E-mail: **
This comment can be published in the print version of The Prague Post
Enter the text on the right:
visual captcha
Comment: *
* Required field. In order to be approved for display, comments must have a first and last name and a city.
** E-mails are required and will only be used for internal purposes.

Most visited in Business Listings


The Prague Post Online contains a selection of articles that have been printed in
The Prague Post, a weekly newspaper published in the Czech Republic.
To subscribe to the print paper, click here.
Unauthorized reproduction is strictly prohibited.